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Welcome to the new updated XLHLink.com!
REsources

REsources

Resources for your practice Resources for your patients Patient Case studies video library stay informed

Helpful resources for your patients

Downloadable resources made for your patients to help them learn more about XLH

Cover of the Patient Brochure

Patient Brochure

This resource explains the basics of XLH for those interested in learning more about the condition and its cause.

Download
Cover of the Transition of Care Guide

Caregiver Brochure

This resource explains the basics of XLH for caregivers interested in learning more about the condition and its cause.

Download

Online resources and communities

Kyowa Kirin is a proud sponsor of XLHNetwork, NORD, and their goals.

XLH Network logo

The XLH Network

The XLH network is a worldwide community of patients, caregivers, and medical professionals.

Visit website
NORD logo

National Organization for Rare Disorders (NORD)

NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.

Visit website
Global Genes logo

Global Genes

Global Genes is a rare disease patient advocacy organization that works to build awareness, educate the global community, and provide connection and resources.

Visit website
Stay connected

Set up time with a representative to talk more about XLH, or sign up for news and information about XLH.

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